Words do make a Difference

There has been much debate on words these days. I was listening to the political debate the other day as Donald Trump stated, “They are just words.” With the debate or the context of why he said what he said aside. When he said that, Donald’s words echoed in my head. They affected me.

Questions ran through my head like, “Well how powerful are words really? Do they truly matter and make a difference?”

I thought, “That’s just not true, words are not just words, they are powerful in so many ways.” Thoughts that we formulate into words can have a giant impact on everything. There is intent behind everything we say and I am going to show you in this post exactly how powerful words can be.

Words are extremely powerful. If we were all to be more thoughtful with our intentions, our thoughts and eventually our words how much could we impact the world?

I wrote an article last May about a little boy named Gabe that has a genetic disorder called Duchenne muscular dystrophy and his parents’ fight with the FDA trying to get a drug called, Eteplirsen, approved that could possibly triple his life span along with so many other positives.

A fight worth fighting, wouldn’t you agree?

At the time I was doing research of my own trying to get my son Jimmy on a drug trial that could help him immensely with his brain tumor. In a conversation I was having with my cousin Buzz, he mentioned Gabe’s story to empathize with me on struggles of trying to get approvals through the FDA. Something changed in me after Buzz told me about Gabe. I don’t know Gabe or his family personally, but a feeling came over me that I needed to know more. I trusted that feeling. I began reading about Gabe, his story and the struggle with getting a drug approved. I felt so moved by the entire thing that I wrote about it here on youwereborntodothis.com. I wanted to help even if it was something as simple as writing a blog post of a few words and writing some emails to the FDA. I expected nothing in return, I did it because I wanted to. I did it because it felt right.

What’s Worth Fighting For?

This past September Gabe’s dad, Scott, commented on my post with an update. He wrote….

“Lacie – I am Gabe’s dad and your article touched our heart! It means the world to me to hear that we have impacted you. This came back up on my Facebook news feed and I realized I did not reply earlier. As a parent we are responsible for “fixing” all of the bad things that happen to our children. If one of my 4 children fall down and cut their leg I bandage and kiss it and make it better. I cannot make this better by myself. When your child is dying you will do ANYTHING for them and you pray everyone you come across takes this story to heart and helps in some little way. As a result of your post, many folks have reached out to us to help. They have informed me of letters, emails, and phone calls made to the FDA asking them to approve the drug Eteplirsen and all of this is a direct result of your post. Please know that YOU are making a difference not only in your own family’s life but in our life as well. Yesterday evening it was announced that Dr. Farkas who was with the FDA is no longer with the agency. He was the main FDA panel member that was blocking the approval of the drug. The stock of the company soared this morning with this announcement yesterday and my hope is this is a sign that approval is coming very soon. I wanted to give you an update and to let you know that like you, as long as there is breath in my lungs I will continue to fight for my son…I just pray we win the fight! May God Bless you and your family and thank you for your post!”

I couldn’t stop smiling after reading it. “One small action, a blog post and a few emails helped in their gigantic fight against the FDA?” I thought to myself. I read the response out loud again. I nodded my head in complete acknowledgment, “Words mean something and sometimes they mean everything.”

As I sat down this evening, Gabe’s face popped into my head. I picked up my phone and started typing in Gabe’s parents names into Facebook and their profile pictures came up reading,

“ETEPLIRSEN APPROVED!”

I immediately scrolled down in their profiles and found article after article speaking of it. I sent Gabe’s parents a message letting them know, “We’re jumping for joy for them here in Pittsburgh and of course sending all our love and healing prayers.”

Their joy immediately became mine. I reveled in it for a moment and then yet again I felt the need to write about it. They fought and fought and fought and they did it. The drug is approved. They gave their son more time and maybe enough time for advances in medicine to find a cure for Gabe. Wow. Just Wow. Revel in that for a moment, you may feel their joy too.

Here is one of the articles that speaks of the incredible news…

FDA Approves Experimental Drug to Treat Rare Form of Childhood Muscular Dystrophy

The Griffins have played a huge role in paving the way for other parents to make this battle a bit easier to take on. There intention is love, unconditional love for their little boy. I, as a parent that have my own mountains to climb, can’t express enough gratitude and love towards these people. They have touched my heart and I will forever carry their story with me.

As Tiare Dunlap of People Human Interest wrote, “With this approval as a precedent, drugs that use personalized genetic medicine to treat other rare diseases have a clear pathway to approval. More than a dozen drugs to treat other variations of Duchenne are currently in the development and clinical trial phases.”

http://www.alreporter.com/palmer-says-new-drug-will-help-duchene-muscular-dystrophy-patients/

If we all play a small role, use our intentions, our thoughts and eventually our words we can all make a positive impact on this world.

I want to make a point to tell you that small actions of kindness make a difference. I write this with the intention of building awareness that we can all have a positive impact on one another. We are all connected and our words sometimes help bridge the gaps that seem to separate us. Remember that. Don’t hesitate to help someone, even if it’s with something as simple as words.

WORDS DO MAKE A DIFFERENCE! WORDS DO MATTER!

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